Season 1
Parenting is hard, but when you are in a new country, learning a new language and adapting to a new way of life… Parenting just got a little harder.
Listen to international parents share their experience living abroad, and how they keep it all together without going crazy. Get ready for some laughs, tears and unexpected stories from incredible parents.
Ep 19: What Would You Do If Your Child Got A Rare Disease?
This episode is all about helping this momma get through a very difficult time in her and her family's life right now.
This whole hour will be focused on Kathure’s family and her daughter, little Beautiful Ayah. Last November, Ayah got diagnosed with SMA which stands for Spinal Muscular Atrophy. SMA is a very rare disease and 1 out 10.000 children get diagnosed with this disease every year. It is so rare that Denmark has not approved the treatment for it since they only get 2 cases every year. Kathure has to go outside Denmark to get the treatment for a gene replacement therapy called Zolgensma, which will cost them 2million USD out of pocket.